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Private-Duty Home Care Alongside Hospice: Added Support for Families

When someone is living with a terminal illness, the licensed hospice team addresses the person’s medical, emotional and spiritual end-of-life needs. However, families may still need additional help with personal care, meals, companionship, household routines and supervision between scheduled hospice visits.

Horizon Care Services provides private-duty home care alongside hospice throughout Palm Beach County, Martin County and St. Lucie County. Our caregivers can supplement the hospice plan with practical, nonclinical assistance based on the client’s needs, requested schedule and caregiver availability.

Horizon Care Services is not advertising itself as a hospice provider through this program. We do not determine hospice eligibility, certify a terminal diagnosis or replace the physicians, nurses, social workers, therapists, chaplains or aides assigned by a licensed hospice organization.

Private-duty caregiver helping an older woman remain comfortable at home while her daughter provides companionship.

What Is Hospice Care?

Hospice is specialized care for people with a terminal illness who have chosen comfort-focused care instead of treatment intended to cure the terminal condition.

A licensed hospice provider develops and manages the hospice plan of care. Depending on the individual’s circumstances, the hospice team may address:

  • Pain and symptom management
  • Nursing care
  • Hospice physician services
  • Medications related to the terminal illness
  • Medical equipment and supplies
  • Hospice aide visits
  • Social-work services
  • Spiritual support
  • Short-term inpatient care
  • Hospice respite benefits
  • Bereavement support for the family

The exact services, visit schedule and availability of hospice team members are determined by the hospice provider and the patient’s plan of care.

When Should a Family Consider Hospice?

A person does not need to wait until the final days of life to ask questions about hospice.

A family may wish to speak with the person’s physician or a licensed hospice provider when:

  • A serious illness continues to progress
  • Treatment is becoming more burdensome
  • Symptoms are becoming more difficult to manage
  • Hospitalizations or emergency visits are becoming more frequent
  • The person wants to focus on comfort
  • Family members need additional end-of-life guidance
  • A physician recommends discussing hospice options

Horizon Care Services cannot determine whether someone qualifies for hospice. Eligibility must be evaluated and certified by the appropriate physicians and hospice provider.

Where Is Hospice Care Provided?

Hospice may be provided in:

  • A private residence
  • An assisted-living community
  • A nursing home
  • A hospice facility
  • A hospital
  • Another setting the hospice provider approves

Many people receive routine hospice care in their own homes. The frequency and duration of hospice visits depend on the person’s condition, the hospice plan and the applicable level of care.

Routine hospice care at home does not necessarily mean a hospice professional remains in the residence continuously. Families should ask the hospice provider exactly how frequently team members will visit, whom to call after hours and what support is available during a crisis.

How Private-Duty Home Care Can Supplement Hospice

Private-duty caregivers and hospice professionals have different responsibilities.

The hospice provider manages clinical end-of-life care related to the terminal illness. Horizon caregivers can provide additional assistance with everyday activities when those services are included in Horizon’s private-duty care plan.

Personal-Care Assistance

Weakness, fatigue, pain or limited mobility may make personal-care activities more difficult.

Depending on the care plan, a Horizon caregiver may assist with:

  • Bathing
  • Dressing
  • Grooming
  • Toileting and hygiene
  • Oral-care reminders
  • Incontinence care
  • Getting comfortably settled in bed or a chair
  • Changing clothing or linens following an everyday accident
  • Maintaining familiar personal-care routines

Care is provided with attention to the client’s privacy, comfort, preferences and dignity.

Companionship and Reassurance

The presence of another person can be meaningful when family members cannot remain in the home continuously.

A caregiver may provide:

  • Quiet companionship
  • Conversation when desired
  • Reading aloud
  • Music or familiar television programs
  • Assistance communicating with family members
  • A reassuring presence
  • Help maintaining familiar routines
  • Support with approved activities based on the client’s energy level

Caregivers provide emotional encouragement but do not offer professional mental health, grief or spiritual counseling.

Meal Preparation and Everyday Eating Assistance

When permitted by the client’s hospice plan and written dietary instructions, a caregiver may assist with:

  • Preparing simple meals and snacks
  • Grocery shopping
  • Bringing permitted food and beverages to the client
  • Mealtime cueing
  • Approved eating assistance
  • Hydration reminders
  • Cleaning the kitchen after meal preparation

The hospice team or another qualified healthcare professional must address loss of appetite, nausea, dehydration, swallowing difficulty, weight loss and other clinical concerns.

Caregivers do not create medical diets or change food textures, fluid consistency or swallowing precautions.

Mobility, Transfers and Positioning

A caregiver may provide approved assistance with:

  • Walking through the home
  • Moving between a bed and chair
  • Toileting transfers
  • Entering or exiting a vehicle
  • Repositioning for everyday comfort
  • Using a walker or wheelchair
  • Keeping commonly used pathways clear

Caregivers use only transfer methods and equipment for which they have the appropriate training and authorization.

Clinical positioning schedules, pressure-injury prevention plans and specialized transfer techniques must come from the hospice nurse, therapist or another qualified healthcare professional.

Medication Reminders

A caregiver may provide medication reminders according to written instructions included in the private-duty care plan.

The hospice team remains responsible for clinical medication management related to the terminal illness. Unless an appropriately licensed professional is assigned and the service is authorized, Horizon caregivers do not:

  • Administer medication
  • Change dosages
  • Decide whether medication should be withheld
  • Evaluate whether medication is working
  • Determine the cause of pain or another symptom
  • Adjust comfort medications
  • Fill or change medication-delivery equipment

Medication questions and symptom concerns should be directed to the hospice nurse or prescribing healthcare professional.

Light Housekeeping and Household Support

Family members may have less time and energy for household responsibilities while caring for someone receiving hospice services.

Depending on the care arrangement, a caregiver may assist with:

  • Washing dishes
  • Light laundry
  • Changing bed linens
  • Light vacuuming
  • Taking out household trash
  • Organizing frequently used supplies
  • Grocery shopping
  • Pharmacy pickup when authorized
  • Routine errands
  • Keeping commonly used areas comfortable

These services do not include heavy cleaning, professional sanitation or hazardous-waste removal.

Respite for Family Caregivers

Family caregivers often provide much of the everyday support for someone receiving routine hospice care at home. Private-duty respite can give family members time to:

  • Rest
  • Sleep
  • Work
  • Attend appointments
  • Complete errands
  • Care for children or other relatives
  • Spend time away from caregiving responsibilities

Horizon’s private-duty respite services are separate from any inpatient respite benefit supplied by the hospice provider.

Assistance may be arranged for several hours, recurring visits, evenings, overnight care or more extensive support, depending on the client’s care plan and caregiver availability.

Overnight and 24-Hour Assistance

Some families need additional help during evenings or overnight hours.

Depending on the assessment and available staffing, Horizon may arrange:

  • Evening assistance
  • Overnight care
  • Live-in care
  • Multiple caregiver shifts
  • 24-hour private-duty support

These private-duty arrangements are not the same as Medicare’s continuous home-care level of hospice care. Continuous home care is a specialized hospice service provided during qualifying periods of crisis and must be arranged by the hospice provider.

Working With the Hospice Team

Private-duty caregiver coordinating an older adult’s home-care schedule with a licensed hospice nurse.

With the client’s authorization, Horizon Care Services can coordinate the nonclinical home-care arrangement with the licensed hospice provider.

Coordination may include:

  • Receiving written instructions relevant to caregiver responsibilities
  • Organizing caregiver schedules around hospice visits
  • Maintaining current hospice contact information
  • Communicating permitted observations
  • Helping keep approved supplies accessible
  • Following written mobility or dietary precautions
  • Updating authorized family members
  • Adjusting the private-duty schedule when appropriate

The hospice team remains responsible for the hospice plan, terminal-illness care, clinical symptom management, medications, medical equipment and healthcare instructions.

Observing and Reporting Changes

During scheduled care hours, a Horizon caregiver may observe and report changes or concerns to the client, an authorized family member or the hospice team.

Caregivers do not clinically assess symptoms or determine whether a change is part of the dying process.

Families should obtain written instructions from the hospice provider explaining:

  • Which changes should be reported
  • Whom to call during office hours
  • Which number to call after hours
  • What to do if symptoms suddenly worsen
  • When the hospice nurse will visit
  • When emergency services should be contacted
  • What to do if the client dies at home

Caregivers should follow the client’s established hospice instructions and emergency plan.

What Horizon Caregivers Do Not Provide

Unless an appropriately licensed professional is assigned and the service is authorized, Horizon’s private-duty caregivers do not provide:

  • Hospice physician services
  • Nursing assessments
  • Pain or symptom management
  • Medication administration
  • Medication dosage changes
  • Injections or intravenous treatment
  • Wound treatment or dressing changes
  • Oxygen adjustment
  • Catheter or feeding-tube management
  • Clinical respiratory care
  • Physical, occupational or speech therapy
  • Spiritual counseling
  • Professional grief counseling
  • Certification of death
  • Pronouncement of death
  • Emergency hospice response

These services must be delivered by the hospice provider or another appropriately qualified healthcare professional.

Hospice Equipment and Supplies

The hospice provider generally determines which equipment and supplies related to the terminal illness are included in the hospice plan.

Depending on the plan, equipment may include:

  • A hospital bed
  • Oxygen equipment
  • A wheelchair
  • A bedside commode
  • Pressure-relieving surfaces
  • Other medically necessary supplies

The hospice provider, equipment supplier or another qualified professional remains responsible for ordering, delivering, installing, adjusting and explaining the safe use of equipment.

Horizon caregivers use only equipment for which they have the necessary training and authorization.

Medicare and Hospice Coverage

Under Medicare, hospice eligibility generally requires certification that the person has a life expectancy of six months or less if the terminal illness follows its expected course.

A person may continue receiving hospice beyond six months when the hospice physician properly recertifies eligibility. Six months is therefore an eligibility guideline—not a prediction that the person will live exactly six months.

Medicare’s hospice benefit may cover qualifying services related to the terminal illness when care is provided or arranged by a Medicare-certified hospice.

Horizon’s supplemental private-duty caregivers are not automatically included in the Medicare hospice benefit. Families are responsible for verifying:

  • Which services the hospice provider supplies
  • The frequency and duration of hospice visits
  • Which medications and equipment are covered
  • Whether respite care is available
  • What services require private payment
  • Whether long-term care insurance or another benefit applies

Review Medicare’s hospice coverage information or contact Medicare, the hospice provider or the client’s insurance carrier for individual coverage questions.

Private-Duty Hospice Support in Our Local Communities

Horizon Care Services provides supplemental private-duty home care throughout Palm Beach County, Martin County and St. Lucie County.

Communities served include North Palm Beach, Palm Beach Gardens, Jupiter, West Palm Beach, Wellington, Boca Raton, Delray Beach, Boynton Beach, Tequesta, Stuart, Hobe Sound and Port St. Lucie.

Service availability depends on the client’s location, requested schedule, care plan and caregiver availability.

Talk With Horizon Care Services

If someone you love is receiving hospice services and your family needs additional help with personal care, companionship, meals, household routines or overnight support, Horizon Care Services can help you explore a supplemental private-duty care arrangement.

Call 561-776-7757 (toll-free 877-227-3890) or contact Horizon Care Services to discuss private-duty home care alongside hospice.

This page is for general informational purposes and is not medical, hospice, legal or insurance advice. Questions about hospice eligibility, symptoms, treatment and covered services should be directed to the person’s physician, licensed hospice provider, Medicare or insurance carrier.

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